BioMarin Pharmaceutical, with a hemophilia gene therapy in development,
s using arts to engage and educate teen patients and their families. (BioMarin)
s using arts to engage and educate teen patients and their families. (BioMarin)
It’s showtime for “Hemophilia the Musical,” a BioMarin-sponsored show created by teens. This past weekend, 25 teens with hemophilia came together in New York from around the country to write and direct the original six-song musical with a storyline around teens who are “different” because of medical conditions.
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Jeremy Nobel, M.D., founder of the UnLonely Project, talked to the students and families about the physical effects of loneliness, a common problem for chronic disease patients, and the power of the arts to help make connections. Research shows that loneliness and isolation result in a 30% increase in risk for early death. Put another way, “Being lonely is like smoking 15 cigarettes a day,” Nobel said. His organization works to increase awareness of the toxicity of loneliness, reduce its stigma and create arts programs for people to help make social connections.
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Jeremy Nobel, M.D., founder of the UnLonely Project, talked to the students and families about the physical effects of loneliness, a common problem for chronic disease patients, and the power of the arts to help make connections. Research shows that loneliness and isolation result in a 30% increase in risk for early death. Put another way, “Being lonely is like smoking 15 cigarettes a day,” Nobel said. His organization works to increase awareness of the toxicity of loneliness, reduce its stigma and create arts programs for people to help make social connections.
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